Yunak R, Chontawan R, Sripichayakan K, et al. Living withthe differences: Thai adolescents’experiences of living withtransfusion-dependent Thalassemia. Thai J Nurs Res2009;13:318-31.
Baghianimoghadam MH, Sharifirad G, Rahaei Z, et al. Healthrelated quality of life in children with thalassemia assessedon the basis of SF-20 questionnaire in Yard, Iran: acase-control study. Cent Eur J Public Health 2011;19:165-9.
Trachtenberg FL, Gerstenberger E, Xu Y, et al. Relationshipamong chelator adherence, change in chelators, and qualityof life in Thalassemia. Qual Life Res 2014;23:2277-88.
Koutelekos J, Haliasos N. Depression and Thalassemia inchildren, adolescents and adults. Health Sci J 2013;7:239-46.
Behdani F, Badiee Z, Hebrani P, et al. Psychological aspectsin children and adolescents with major Thalassemia: A casecontrolstudy. Iran J Pediatr 2015;25:314-22.
Jantan A, Naznin M, Nora M, et al. Thalassaemia: A study onthe perception of patients and family members. Med JMalaysia 2011;66:326- 34.
Shosha GMA. Needs and concerns of Jordanian mothers withthalassemic children: A qualitative study. J Am Sci 2014;10:11-6.
Pouraboli B, Abedi HA, Abbaszadeh A, et al. The burden ofcare: Experiences of parents of children with thalassemia. JNurs Care 2017; 6: 1-8.
Aziz AR, Mohammed SH, Aburaghif LF. Burden of caregivercare for children with thalassemia at Babylon Child andMaternity Teaching Hospital / Babylon Governorate / Iraq.IOSR JNHS 2015;4(6):82-7.
Shosha GA, Kalaldeh MA. Challenges of having a child withthalassemia major: a phenomenological study. J Res Nurs2018;23:9-20.
Lee C, Ayers SL, Kronenfeld JJ. The association betweenperceived provider discrimination, health care utilization andhealth status in racial and ethnic minorities. Ethn Dis2009;19:330-7.
Wong LP, George E, Tan J. Public perceptions and attitudestoward thalassemia: Influencing factors in a multiracialpopulation. BMC Public Health 2011;11:1-9.
Liem RI, Gilgour B, Pelligra SA, et al. The impact ofThalassemia on Southeast Asian and Asian Indian families inThe United States: A qualitative study. Ethn Dis 2011;21:361-9.
Shamseer L, Moher D, Clarke M, et al. Preferred reportingitems for systematic review and meta-analysis protocols(PRISMA-P) 2015: elaboration and explanation. BMJ2015;349:g7647.
Nowell LS, Norris JM, White DE, et al. Thematic analysis:Striving to meet the trustworthiness criteria. Int J Qual Meth2017;16:1-13.
Bettany-Saltikov J. How to do a systematic literature reviewin nursing: a step-by-step guide. Maidenhead: McGraw-Hill/Open University Press, 2012.
Wahab JA, Naznin M, Nora MZ, et al. Thalassaemia: a studyon the perception of patients and family members. Med JMalaysia 2011;6:326-34.
Shahraki-vahed A, Firouzkouhi M, Abdollahimohammad A,et al. Lived experiences of Iranian parents of beta-thalassemiachildren. JMDH 2017;10:243-51.
Arbabisarjou A, Karimzaei T, Jamalzaei A. The perception ofbiological experience in patients with major thalassemia: aqualitative research. GJHS 2015;7:79-87.
Mazzone L, Battaglia L, Andreozzi F, et al. Emotional impactin β-thalassaemia major children following cognitivebehavioural family therapy and quality of life of care givingmothers. Clin Pract Epidemiol Ment Health 2009;5:5.
Widayanti CG. The perceived role of God in health and illness:The experience of Javanese mothers caring for a child withthalassemia. J Psikologi Undip 2011;9(1): 50-56.
Mashayekhi F, Rafati S, Rafati F, et al. A study of caregiverburden in mothers with thalassemia children in Jiroft. ModernCare J 2014;11:229-35.
Ghazanfari Z, Arab M, Forouzi M, et al. Knowledge level andeducational needs of thalassemic children’s parents in Kerman.J Crit Care Nurs 2010;3:e7143.
Ishfaq K, Ali AA, Hashmi M. Mothers’ awareness andexperiences of having a thalassemic child: A qualitativeapproach. PJSS 2015:35(1):109-21.
Luong J, Yoder MK, Canham D. Southeast Asian parentsraising a child with autism: a qualitative investigation ofcoping styles. J Sch Nurs 2009;25:222-9.
Saldanha SJ. Stress and coping among parents of childrenhaving thalassemia. IJSR 2015;4:849-53.