This integrative review aimed to synthesize the experience of parents caring for theirchildren with thalassemia. An integrative review of qualitative studies was conductedregarding the experience of parents caring for their children with thalassemia, andMEDLINE, PsycINFO, SCOPUS, and CINAHL databases were searched from January1st, 2009 to March 1st, 2018. Five studies involving participants were included. Childrenwith thalassemia affect their parents’ lives and perspectives. The six themes identifiedcomprised: concern about children in the future, social death and stigmatization, absentsupport network, psychological distress, frustration with treatment, and the need for goodcoping strategies. This integrative review was designed to provide a better understandingof the experience of parents caring for their children with thalassemia. From the corethemes, this integrative review led to an evidence-based practice for supporting andmanaging their condition effectively. Further studies should focus on how to supportparents taking care of children with thalassemia.
parents’ experience, children with thalassemia, integrative review
Received: May 22, 2018
Revision received: May 30, 2018
Accepted after revision: July 10, 2018
BKK Med J 2019;15(1): 100-106.